My parents are in town...I am soooo happy! I love being around them. We took some good pics by the water on our walk today. We live by the marsh...it is a nice walk to see the water.
My parents and I talked about CF alot tonight. They have all but convinced me to write a book about CF, our story, but also the knowledge that we have learned on our own. I know that when Zoe was diagnosed, we were handed a 'book' about CF. Well, I have to tell you, most of the things that actually PERTAIN to Zoe's CF, we have learned by doing our own research. Not from those silly handouts they gave us at clinic. Soooo...we will see...who knows??
Enjoy the pics of our day! I really hope and pray that you all are having a BEAUTIFUL weekend like we are. We feel very blessed right now...NO COUGH...Yeah!!!!!!!!!!!!!!!! Love Ya'll!!!
aaww!! looks like so much fun!! we're jealous that you guys have them now.. hehe. but, i guess we get them for a while when baby stella gets here!
ReplyDeletei think you should write a book too! i'd be one of the first to buy it!
Well, I do think you guys should write something! As I always say, I learn so much from you guys EVERY time I talk to you!!! Miss you guys so much and can't wait to see you! -Andrea
ReplyDeleteWhat great photos, it looks like you guys had a great time.And why not write a book im sure that you have lots of great stories and info.The did not put her on anyother oral antibiotics, she is on zithromax.Im so excited to start tobi with the more agressive cpt, i know we can clear this up.
ReplyDeleteI want a copy of the book when you are done:)
ReplyDelete(Just a little encouragement;)
M
also anu good books on cystic fibrosis and any insight?? i would gratly appreciate it
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