Wednesday, March 12, 2008

CF realization

I knew the day would come, just really didn't think it was going to come so early. Yesterday, Zoe walked up to me, looked up at me with those big blue eyes and said "Mommy, do you have cf?" I stopped what I was doing. I looked down at her thinking, what do I say????? I said, "No, baby, mommy doesn't have cf." To which she replies, "Why not?" Wow. She isn't even 4 yet. This is harder than I thought it was going to be....the moment they notice they are different, the moment they realize they are the only one in the family with cf. I said, "I guess God wanted you to be extra special." She was good with that answer. She went about her normal 3 yr old play. I cried.

Wednesday, March 5, 2008

Indemnity!! I never knew!

Today I found out about something wonderful. When I say wonderful, I mean WONDERFUL!! Everytime Zoe is in the hospital, Scott takes vacation or sick time, whatever he has available. When that time runs out, as it always does, it gets real rough. My very dear friend, Mel, who also happens to have cf, told me today about indemnities. I cried when she told me about this insurance. Essentially what it does is pay me money when Zoe is in the hospital, on home health care, for an out patient surgery procedure, for an emergency visit, and I.C.U. stays also. The pay is different for all of the above, but oh my gosh, what a blessing, what a relief. The best thing of all is, that since Zoe is so young, we can get a really great monthly rate, forever! The rate will never change, ever! I am going to let my cf social worker know about this, as well as every family I personally know that has cf in their lives. Thank you Melissa, I love you!

Zoe's cold seems to be better as far as her nose goes. She isn't sneezing constantly anymore. Today she had quite a few very mucousy coughing sessions. I really pray she can fight this on her own and not have to do antibiotics. It has only been 5 weeks since antibiotics and her tune-up. I really want at least that 3 months we had last tune-up, cough-free.

Today I have been thinking about my support system that I have with I love my friends. I am grateful for them. Actually in all reality, I wouldn't know what to do without them. They relate, they love me, even in my quirky moments....

Goodnight to all,

Monday, March 3, 2008

Zoe has a cold...

Last night Zoe started acting sick. Actually, to explain, Zoe hasn't caught many "colds". The last "cold" she had was probably about 2 years ago. Weird, I know. You see, when Zoe is sick, it is a lung bacterial infection. It takes us months and months of oral, inhaled and iv antibiotics to clear her up then. But, as far as the normal kid "colds" she just doesn't normally get them. Soooooo.....the big question now will be....will this "cold" turn into a lung issue???? I hope not. We are going to watch her for a few days and see what happens. Right now, it is an extremely stuffy nose, sneezing, watery eyes, occasional cough. MAYBE it will go away....
On another note, we met a wonderful gal tonight, talked to her about cf, the walk, etc....she told us that she and others will be on board to join our team, "Zoe for Life" for the Great Strides walk in April! It is always so wonderful to Scott and myself to meet people that seem to 'really' care.
Thank you all for your love and support...without you we would be NO-Where.
Have a great night!
Scott and Jada....and of course, Zoe