Friday, May 22, 2009

Visitors Galore!!!

Last week started with an unexpected visit with Scott's youngest son, Connor! We haven't seen him in 5 years, so it was very nice!! He is a great kid! He wins a lot of skate boarding competitions. Hopefully we can get him down to visit in the summer.

Wednesday Scott's dad arrived. Scott's mom decided this time to fly all the way back to Vermont instead of making the long drive, can't say that I blame her! We miss her terribly! Pa is a great addition to our already crazy family....he is cooking for me tonight and tomorrow night!! Yeah!!!

Thursday evening is when Tom (Just1More), Jo (TestifytoLove), (blogging friends from and their lovely 8 children came to visit. I tried very hard to get the kids names down pat by the time they left, but at the end of the night, I was calling one of their sweet daughters Johanna. Uggghhh! They were in the door about 3 minutes and I had already kidnapped the baby! He is such a sweet baby! Ansu, their oldest is soft spoken (with that beautiful African accent), sweet and very helpful. Jo said he was sent to her from God, I believe it. Emily is next, I can't say that I saw her much, her and my Madison hit it off immediately, hence were off doing 'girlie' things the whole night. Caleb is their 'future engineer' or whatever involves a lot of brains....he is one smart little guy! Chetan was the birthday boy....I think he really enjoyed his dirt & worm cake. He has a very sweet, gentle spirit! Micah is their little CF'er. He is a sweetie also....I do believe he has more energy than I have ever had my entire life!! He loved throwing the ball for Tamber, he was amazed that she would bring it back to him! Tom and Jo have done an AMAZING job with Micah. Honestly, he was in really rough shape when they adopted him. They deserve a special place in heaven for their love and care! Ragan (what a GREAT name by the way)was a little distraught because her new necklace broke, I felt bad for her, but Jo and Tom eased her tears with promises of a new one. She has absolutely beautiful eyes!! Little Elena....what a cutie! She was shy at first, staying in Tom's arms. She finally warmed up enough to get down. She really liked swimming! Our pool was FULL of kids! There she was right in the middle of it all, in her little float ring! Then there is the Judah! Ooohhh I just loved holding him, especially after he fell asleep, there is nothing like cuddling with a sleeping baby! He NEVER gets put down, they said there is always someone holding him! I can see why, he is just so darn cute! It was great meeting them all! We had a very nice night (a little loud and crazy....but fun).

Have a GREAT weekend!!

Wednesday, May 20, 2009

Yucky week for Zoe...

Zoe caught a cold last week so we have been watching her. It seems to be all in her nose. Completely congested and drippy. Then she started Sunday with lower abdominal pain. She had that off and on until yesterday afternoon, when her G.I. doc wanted a x-ray to make sure there was no blockage. At this point she came down with a 102 fever! Thank God, there was no blockage. Her CF clinic calls to tell me lab results (which I already knew), that she had cultured OSSA (just regular ole Staph.), asked if she was sick at all, to which I replied with the complete last week and a half run down. Soooo...she started Bactrim today. They don't want her sinuses to get any worse.
Scott's dad arrived today, he will be here with us until Monday. He is great to have around, keeps the kids busy playing games, cards, etc.... :)

Tom, Jo, and their 8 lovely children will be over tomorrow on their way home from their Make-A-Wish trip to Disney. (They are blogging friends from They will be having dinner and b-day cake here (one of their son's b-day is tomorrow). We can't wait to meet them all in person!

That is what is happening around here. Take care!

Saturday, May 16, 2009

I'm an Aunt again!!!

My youngest brother and his lovely wife had their first baby this week! Her name is Stella Nicole Jenkins, weighed 6 lbs. 11 oz. They are on cloud 9! Patrick is the last one of us ( out of 10 kids) to have a baby, so it was pretty exciting! She is beautiful!
By the way....recognize that purple bracelet??? It sais 'Breathe', the other side sais "Cure Cystic Fibrosis'....Patrick and Misty both wear one for Zoe.....I had them made and sell them....if anyone wants any, just let me know!
Zoe had her ENT appt. on Thursday....she had come down with a cold the beginning of the week, but I haven't called clinic because she really isn't coughing. It seems to be all in the nasal passages. Granted, it could progress, but we decided to wait and let her ENT look. She agreed, it is all sinusitis right now. She did give me a script for Bactrim, if she doesn't improve, or develops a cough, we will start it. Her culture from last week grew Staph. We'll take that. At least it wasn't her MRSA. Other than that, we go back to Cf clinic, GI, and ENT all in July.
Have a wonderful weekend.....take care of you and yours....

Friday, May 8, 2009

Good News Finally!!

YEAH!!!!!!!!!!!!! Zoe gained 2 whole pounds!!!!!!!!!!! In just over 6 weeks!!! Truly a lot of answered prayers!....and a lot of food!!! That puts her BMI at 54 %...they want it to be a minimum of 50 %, so we are good for now!!!

I did discover Haagen Dazs Icecream though! Did you know that the chocolate peanut butter has 23 grams of fat in just 1/2 cup!! OMG! She LOVES it!!

They don't need to see her until July now. We just have to keep stuffing her.....and pray that her culture comes back clean. Hopefully then we can have a few months break...she needs it.

Thank you all for your thoughts and prayers.....

Monday, May 4, 2009

Great Strides Walk

Princess Zoe

Zoe made a Mommy's Day Craft

Benjamin Alex

Our team shirts

My sis, Sharonda & neice, Chelsey

Caleb & Austin finished First

Sydney, Dad, Zoe-Home Depot project

Ben&Jerrys-CFF ladies, Austin, Alex,Madison

Nicole(Bonefish Grille) & son
Reece (his first fundraiser!!!:)

Mandy, Rielly, MiKaela, David
(Bonefish for Zoe)

The table at Ben and Jerry’s was great! They had a great turn out all day. It is awesome because we got to talk to practically everyone about CF! We made about $250.00! Met several wonderful families that came to the walk that next Saturday.
There was around 200 or so at the walk. They think they will have made around 55-60 thousand! It was a lot of fun. Zoe doesn’t do the walk, she and I stay and talk to people, oh, and she EATS while everyone else is getting exercise! My sister and her daughter came with some of her co-workers, the friends we have at Bonefish Grille came, families with their kids from the Christian School….it was so nice to see people there to walk for our Zoe!
We have started going bowling on Sunday afternoons as a family (on Sundays it is only 99 cents a game). It has been a blast! Even with Zoe just throwing her ball down at the end, she still ended up yesterday with a score of 83! Yes, bumpers are an AMAZING help!
Zoe’s appt. is Friday. I am very interested to hear what all the docs have to say. Also to see if she has finally gained any weight.
Hope everyone is having a lovely spring!