Tuesday, April 24, 2012

Great clinic visit!!

Two weeks ago we went to CF clinic because Zoe was so sick. She was coughing so much that she could not to her breathing test (PFT's)....the best number they could get out of her was a 44%....PFT's are perfect if they are at least 100%...meaning you have 100% of your lung function. We received a 2 week pass to try oral Cipro and 5 days of Prednisone. Zoe's never been on Prednisone. It can be a drug with several side effects. She ended up with just a red face and legs cramping. But the drug did amazing for her lungs!!!! She stopped coughing after the 5 days. So today was her clinic visit....PFT's......drum roll.......she blew a 106!!!!! They were amazed!! I was amazed!!! Since she did so well....they decided to add another medicine to her daily routine. An inhaled steroid....hoping that we will get more time in between having to use antibiotics for her cough. Her Great Strides walk is this Saturday! YAY!!! It has been a super hard year fund raising....a lot of people just don't have any extra money to donate.....which is hard for us because the funds need to keep coming in for there to be a cure someday for this horrible disease that is ravaging the inside of our precious daughter. Please consider donating just a little! Every dollar helps!!!! The link to donate is on the right side of our blog.... Thank You from the bottom of our hearts!!!!!! Take care of you and yours..... Jada

Thursday, April 12, 2012

Sorry it's been awhile since we've updated..... It's been quite busy! Well, our beautiful little princess turned 8 on last Saturday the 7th!! Hurray for you Zoe !! Unfortunately she also has picked up a virus and was running about a 102.7 degree temp. She was so wiped out she fell asleep in bed during her morning breathing treatments.... as you can see from the pic. She's also been coughing up a lot of mucus and Jada and I believe that she never was completely "cleaned" out after her last IV regimen and hospital admission. Jada took her to her CF docs on this past Monday. After quite a bit of discussion it was decided to put her on oral Cipro for two weeks and evaluate her. If she's not made significant progress after that we will put her on IV antibiotics for another three weeks.... mist likely one week in the hospital and we will administer the remaining two weeks at home via her port. Hopefully after this she will be feeling a lot better and be all set for her Dreams Come True trip to Hawaii in late May :-).... 

On a lighter note she did have a very nice birthday and Easter!  

We are also gearing up for her Great Strides Walk on Orange Park at the end of the month.... Jada and I so  very much appreciate your donations and look forward to seeing many of you at the Walk!! Because of all of you Zoe has hope for the future... God Bless You All!! ....  Scott... Aka daddy