Wednesday, February 25, 2009

Zoo today

I took Zoe to the zoo today! It was a perfect day for it. About 65 degrees, with some clouds and sun. My girlfriends little girl, Michaela went with us so that Zoe would have some company besides me. She loves Michaela, they are the same age and play together very well. So here are some pictures from our day.

Zoe is still doing really well! Had a big belly ache tonight. But still only an occasional cough!! Yeah! Have a terrific night....

Friday, February 20, 2009

This week

I knew it was going to be tough without my kids being around.....BUT....this is crazy! (If you missed a few posts ago, my parents kidnapped my 4 kids for 5 weeks).

I am now Zoe's bestfriend, mom, play with me now, read to me now, talk to me now, etc...etc...etc... Phew! I am tired! I knew I wasn't made to be a mom of just one kiddo!!!

The bad points of my kids being gone:


I MISS talking with my older sons

I MISS them playing with Zoe so I can get a few minutes

Zoe misses them!

Pixie (Madison & Sydney's dog) hides under the bed, under the chair, wherever she can to get away from Zoe's clutches...I have no doubt she MISSES the girls!

I MISS my older sons hanging out with me after Scott falls asleep watching a movie...

The good points of my kids being gone:


I can PEE without shutting the bathroom door

I can come out in the morning with NO bra on under my t-shirt

I don't have to worry about kids walking in my room after my shower

Scott is very happy that I can wear itsy bitsy nightgowns around the house at night

Zoe and I can go out to lunch for $5.00

My grocery bill is so much lower that this week I was able to actually buy things like towels and bathroom rugs

Anyways, the kids got to see snow yesterday, the first time for Sydney and Madison!! They have ridden my parents horse, gone fishing, gone to church, gone to Sam's Club, watched my dad be ordained an Elder, been spoiled rotten by my mom's cooking and played a billion card/board games with my parents! I don't think they will ever want to come home.

The other night, sitting in the 'comfy' living room chair, I was tickling Zoe. She was squirming, laughing....then she did the inevitable 'head-bang' on my nose...with her forehead! I actually heard a crack! OMG! I cried, she whimpered....Scott came running with advil and wine! I believe it is cracked, I can't even touch it still, it hurts so BADDD!

We had the poodles groomed today. The little one (Pixie) is so skinny, she looks like a rat now. I prefer her fluffy, but when noone brushes her, she gets so matted that there are no other options but shaving her. Poor thing.

Zoe's culture results from last week came back. Of course, something new. She cultured Yeast. They do not treat it. Soooo, that was good news (I guess??). Also received a letter that her next CF appt. is scheduled March 31st, along with G.I. So, we have 7 weeks to get the weight on instead of 6.

I will post some pics from this last week...

Hope you all are doing great....take care of you and yours....keep up the FIGHT!


Pixie before 'grooming'

Poor Pixie after 'grooming'

A very nice lady sent Zoe 'healing stones', these are the 'blood stones & quartz chloride'

We rub them on her everynight while praying !!

Making brownies with Daddy

Anybody besides me ever have a sippy cup (for your kiddo) and a martini (for you) on your nightstand????? :)

Thursday, February 12, 2009

Clinic today...

Trying to blow pfts for the first time!

Making a "funny" face before pfts!

What a looonnnggg day. Zoe had to be at CF clinic at 10:30, then ENT at 2:30. CF clinic visit: weight did NOT increase at all. Not one ounce. She is exactly the same as she was last July. We feed her the highest calorie/fat diet possible. With the exception of the supplemental drinks that would be awesome IF she would drink ANY of them. But of course, she doesn't like any of them. Her nutritionist said today, "Well, you are already pulling all my tricks....let's brainstorm...". So her and Zoe's doc talked and came up with a couple of things to 'try'.

We are switching her Zantac to Prevacid. Sometimes one works better/different than the other as far as working with the enzymes to utilize the fats/calories better. We are also adding 500 mg. DHA. They are scheduling her a follow-up in 6 weeks with CF clinic and G.I..

She also did pft's for the very FIRST time today! It was quite funny! She didn't get the having to push your breath out for a full 3 seconds down very well. Even with her only pushing out to 1 1/2 seconds, they were able to get a prelim. # of FEV1 = 102. They said they won't use her numbers in her records until she is 'good' at the technique.

ENT appt. went great! Her nose looks great! So we don't have to go back to ENT for 3 months.

So, that was our day, I'm tiried, going to go cuddle up in bed and watch a funny movie, need to laugh.

Wednesday, February 11, 2009

My kids left today...

My parents stoll my kids!!! Honestly, they took them home with them for 4 1/2 weeks. Well, they took.....Austin 15, Alex 12, Madison 11, Sydney Kaye 7.....I think I might have a heart attack!!! :) Just kidding....but....being without my kiddos for guessed...a LONG time to ME....almost 5 weeks!!! I think I might go CRAZY!!!! Sooooo..... it is me, Scott....and Zoe. That is it. Oh my gosh. My house hasn't been this empty in.....hell....I can't remember when. Uggghhh.
Soooo, if you are on my calling list....BEWARE.... I may be calling much more OFTEN than usual.

On another note, Zoe has her CF appt. tomorrow, and her ENT appt. All in the same day! Please pray that she has had a weight increase....other wise, we will be discussing WEIGHT...Uggghh.

Have a nice night....take care of YOU and YOURS....

Tuesday, February 3, 2009

A CF Reality

Last night at 8:00 p.m., a small, sweet, adorable 7 year old boy named Garren, received a double lung transplant. He has Cystic Fibrosis. His lungs were almost useless....he had to have a transplant. He has been on the waiting list for 6 months. A double edged sword this is. We are grateful, excited and blessed that Garren gets a new chance at life.....we all know it is also a sad day...for the family that lost their child.
I met Garren and his mom (Victoria) in 2006 when I joined (my main support group). We call him G-man on the site! :) He is a trooper!
Please visit his caring bridge site, say a prayer for him and his family.