Zoe for Life: Happy Birthday Baby Girl!!

Wednesday, April 7, 2010

Happy Birthday Baby Girl!!

I can't believe our baby girl is 6 today! Time sure does go by fast. I ask her all the time why she is growing up so quickly....she tells me it's because she eats so good!! She asked me if it had been 6 years ago that she was "hatched" from me....LOL....that is what she calls having a baby!! I love the things that come out of llittle ones mouths!
Have a wonderful day!!
Take care of you and yours........

Jada

To celebrate her 6 years.....please consider donating $1.00 for every year she has been with us!! That's just $6.00!! Simply click on the Great Strides link to securly donate to the CFF!!

2 comments:

Goonie Mom ChristieApril 8, 2010 at 4:26 PM
Happy Birthday Zoe!
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JessieApril 10, 2010 at 12:12 PM
Happy Birthday Zoe!!
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Wednesday, April 7, 2010

Happy Birthday Baby Girl!!

2 comments:

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