Tuesday, April 13, 2010

Clinic

My baby girl's day consisted of this.........wake up....breakfast......1 1/2 hours of treatments w/cpt......thrown in van for one hour drive to clinic........talk with research, nutrition, doctor, pharmacy, resp. tech, then the dreaded throat swab........then the never accomplished before PFT attempt.........then head to lab for yearly blood draw..........did EMLA...on the inside of elbows........first try.......NO GO.....my baby girl being held down by myself and her research doctor........try again....only good looking vein is on the back of hand...of course...NOT EMLA creamed.....go for it we say.........HOLDING a screaming, crying, sweating, scared to death little girl down.....YAY...finally get a good stick........... 10 vials of blood later.........we get to leave.....she is limp, exhausted, white as a ghost.........has me carry her out....Andrea, our CFF lady was there with us today........I'm sure a new experience for her......thank God she was there, she helped carry my notebook, purse, meds from pharmacy....say goodbye to dear sweet 8 month pregnant Andrea,....head home an hour...to do what when we get home????????? TREATMENTS!!!!!!! OMG. I am so over CF. I'm sure Zoe is also. Poor little girl....what else would a little 6 year old girl want to do today?????????UGGHHH!!. Sometimes CF just SUCKS. That is it. Take care of YOU and YOURS,

4 comments:

  1. Sweet Shots By Nicole!April 13, 2010 at 10:41 PM

    Clinic days are the worst when it comes to the little ones with CF. I think, CF sucks almost all of the time. I hope your night is better and that tomorrow is a better day!

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  2. Lil' Chris' MomApril 14, 2010 at 11:01 AM

    I feel ya!!! I HATE CF!! It's not fair that they can't just have fun and play all day and night like other kiddos!!

    Wow, can't believe she is 6 now!! HAPPY BIRTHDAY!! (a little late, sorry;)

    How did the first time doing PFT's go??
    M

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  3. zoes big sisApril 14, 2010 at 1:56 PM

    I'm sorry Zoe..Mommy too.. :( I have been thinking about all of you constantly lately.. I know its that time.. Time for me to hold and Love and see all my Family! I LOVE you all more than Life..
    Hugs, kisses, and Prayers, Tara

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  4. UnknownApril 14, 2010 at 9:29 PM

    So sorry Zoe. Clinic days are tiring days no matter how old one is. Getting poke, prodded, and pinched. Hugs to both of you.

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