Zoe for Life: Happy Dad's Day!!!

Sunday, June 21, 2009

Happy Dad's Day!!!

Happy Dad's Day !!!! We have had a lovely day! Scott worked until 11, came home, we swam in the pool all afternoon, I read my new cook book, then we did treatments, started par-boiling the ribs for Scott's Dad's day dinner! It was then time to make the salad...I normally do this myself....but considering the girls have a garden (totally organic...yeah!!!) and we have our first cucumber and yellow pepper from it....I thought it would be great if we did it together! Zoe got to "cut" something for the very first time. Of course I have this "kid proof" knife that I had ordered from Pampered Chef YEARS ago. It is awesome! You can saw and saw.....but not cut yourself!

The garden!!

Madison, Sydney, Zoe cutting their veggies!!1

Zoe is still doing awesome! Yeah!

I hope you all had a very terrific Dad's day and weekend!!

Jada

1 comment:

AspiemomJune 21, 2009 at 10:15 PM
Sounds like a fun day! It's been YEARS since I spent time in a pool!
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Sunday, June 21, 2009

Happy Dad's Day!!!

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