Zoe for Life: Clinic visit....

Wednesday, July 15, 2009

Clinic visit....

Zoe had clinic on Thursday. She has been doing sooooo good lately, I knew it was going to be a good visit! Her BMI is sitting right at 60%! She sounded clear....looks and acts great! She did her throat culture without crying this time. She is growing up to be quite a little lady!
Received her culture results today.....for the first time in I can't remember when....she cultured....drum rollllllll........NORMAL ORAL FLORA!!!! WOOOOHOOO!! Which explains why she has had such a good couple of months now.
We are busy swimming, doing some school here and there, dentist and ortho appts., literally just enjoying this time of 'wellness'!
Hope you all are having a lovely summer also!
Take care,
Jada

4 comments:

ChristyJuly 15, 2009 at 11:46 PM
Great news on a great check up!
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JenniferJuly 16, 2009 at 11:56 AM
WOO HOO!!! The only thing my summer is missing is Miss Melissa.
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JulieJuly 19, 2009 at 11:01 AM
Great news!
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Samuele SodiniJuly 29, 2009 at 2:09 AM
Wonderful! I have 2 children, Caterina and Lucia... I'm feeling so close to you and your family reading your posts... a big hug!
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Wednesday, July 15, 2009

Clinic visit....

4 comments:

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