Zoe for Life: Zoo today

Wednesday, February 25, 2009

Zoo today

I took Zoe to the zoo today! It was a perfect day for it. About 65 degrees, with some clouds and

sun. My girlfriends little girl, Michaela went with us so that Zoe would have some company besides me. She loves Michaela, they are the same age and play together very well. So here are some pictures from our day.

Zoe is still doing really well! Had a big belly ache tonight. But still only an occasional cough!! Yeah! Have a terrific night....

2 comments:

AnonymousFebruary 26, 2009 at 8:44 PM
It looks like they had a great time! I love the painted manatee (that's what it is, right?)!
ReplyDelete
Replies
UnknownMarch 1, 2009 at 11:28 PM
Thanks for taking Michaela--she had a great time. She loves Zoe and its not often she gets to do something without a sibling in tow...Theo
ReplyDelete
Replies

Add comment

Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Wednesday, February 25, 2009

Zoo today

2 comments:

Blog Archive