Zoe for Life

Sunday, December 6, 2009

Zoe's appt. went ok, they would not give her the H1N1 booster because she was so sick. She has been put on 3 weeks of Bactrim. She is coughing a little less today and has more energy. Hopefully she is on the road to recovery.
Mel (my bestfriend) is doing the same. Her CO2 level got to be 81 the day after she went on the Bi-Pap, but now it is back up to 88, using the Bi-Pap. I am flying to New York tomorrow, a very generous couple has bought me my tickets and hotel near the hospital. Our oldest daughter, Tara, is on her way to our house right now to take care of Zoe while I am gone and Scott is at work. I couldn't make this trip if it wasn't for these angelic people in my life (the couple, my husband-Scott, Tara). People that know and love Mel, are hoping and praying that me being by her side will help her in some small way.
Please pray for Mel, Zoe and my family to be well while I am gone.
Jada

4 comments:

semperfiohanaDecember 6, 2009 at 2:54 PM
have a safe trip! fly with angels! let me know if i can do anything! even though i'm not that close i'm closer than home!
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AspiemomDecember 6, 2009 at 10:38 PM
I know it's been hard with Zoe sick, but I'm so glad you can go be with Mel. I know your heart has been there. The generous couple isn't Peter and Jeanne, is it?

I hope your presence makes a big difference for Mel!
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JenniferDecember 7, 2009 at 10:19 AM
Safe trip and I know that you will make Melissa feel better. Praying for you and your family and I have been praying like I've never prayed before for Melissa and her family. God Bless Peter and Jeanne!

Hugs,
Jennifer
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girlinadreamDecember 10, 2009 at 11:42 PM
Jada,

My heart is breaking for Mel's husband and daughter. So amazing of you to be there with her. Love you!!! xoxo
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Sunday, December 6, 2009

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