Zoe's 2nd sinus surgery on Monday went very well! She still had some packing in her sinus cavity, so they removed that, cleaned her out again, took cultures and finished up in less than 45 minutes. Her O2 was great right after, holding around 96-99! She had her regular CF clinic appt. on Friday. These cultures came back clean also! So, she is still antibiotic free as of right now. She is recovering well, Dr. said she has a lot of 'boogers' in her nose for just getting cleaned out, but her ENT doc said she will have some drainage, etc... for a couple of weeks.
The yucky news was that Zoe had lost over a pound. Since her diagnosis, when we got her caught up on the charts, that was the last time we have ever heard anything about her weight. She has been in the 75-90%. It took a lot of work to get her there...but she has steadily been gaining since diagnosis. I think one of the things that has hurt us the most is that about 2 months ago, she decided that milk and Ranch dressing all taste weird now. She won't drink milk at all now and quit dipping everything in Ranch. She had always drank 8oz. of whole milk mixed with half & half at every meal. Now all she will drink is WATER!! Ugghh.
So, one of the things we are going to try is 15mg. of zinc a day. Her doc and nutritionist said that sometimes when things suddenly taste different or yucky, it can be a zinc deficiency. We all agreed it wouldn't hurt to try. They want to see her in 2 months instead of 3, to check her weight.
Thank you all for praying for Zoe's O2 to be good after this surgery....prayers were heard and answered!!
Have a wonderful week...
Jada
Zoe for Life.... Our journey with Cystic Fibrosis....
answered prayers!!
ReplyDeletezinc is really great for the sinuses. Is will help dry her out.
http://articles.mercola.com/sites/articles/archive/2000/09/03/zinc-colds.aspx
some interesting articles..
http://articles.mercola.com/sites/articles/archive/2004/05/05/turmeric-spice.aspx
http://articles.mercola.com/sites/articles/archive/2008/01/02/fish-oil-treatment-for-cystic-fibrosis.aspx
Glad that it went well, and hopefully you can get her weight up. Have you tried Carnation Instant Breakfast Plus? They are 375 calories & 17g of fat in each can. Reilly drinks 3 a day, and that is really the only thing that keeps her weight up. She loves it. It is like a milkshake, and smells real vanillaish (if that's a word!). Glad you liked my blog design. I'll email you with details on it.
ReplyDeleteCindy
Thanks for the words of encouragement...it really helps. It had been a hard few months and i know we have a long road ahead of us. Some days she seems so healthy that i forget, until its vest time...lol
ReplyDeleteI've been following for awhile. I'm glad O2 is doing better, will continue prayers for weight gain.
ReplyDeleteHappy Holidays!
Angela
www.phoenixsfight.blogspot.com
Merry Christmas!!
ReplyDelete--from Carrie (mamerth)
I've found your blog thru other blogging CF moms. So happy that Zoe's surgery went well! Samantha has had a loss of appetite lately, and since she lingers around the 30th percentile we don't like that at all! I've been told about zinc recently as well and plan on trying it out very soon. Let me know how it goes, and I look forward to reading you regularly!
ReplyDeleteHi! I found your blog and have "talked" to you briefly on the cf forums. I am glad to have found your blog. I just started a blog yesterday. I have a son diagnosed with cf (he is 5). On the forums I am DEES4. Anyway glad that your little girl did great through her last surgery. Happy New Year!
ReplyDeleteCarrie