Wednesday was the Princess Wishes Tea Party! It was done extremely well, I was impressed. They decorated the inside of an old beautiful church, it actually looked like a little castle! Of course just like I figured would happen, Zoe was extremely nervous and shy. She hid behind me most of the time. Finally towards the end of the lunch, she decided she wanted to go say hi to the Cinderella and Belle. So, up we go to try to get the picture I so wanted. Well, she stood there, but I couldn't get a smile for anything!!:brokenheart; She had a good time though, especially when she got home and could tell her sisters all about it.
The next night we went to the Disney Princess on Ice show that they had given us 6 tickets to! "They" being "Dreams Come True". They did the Princess Tea and gave us the tickets, it was so wonderful of them. Also at the tea, they gave Zoe an official program, light-up Cinderella toy, crown, coloring book, tons of hair stuff, nail polish, lip glosses, jewelry, the beautiful dress she is wearing in the picture, etc...The ice show actually was amazing. Very professional ice skaters! They even had a dragon that blew real flames onto the ice!! The kids loved it! We were sitting with the other "Dreams Come True" kids at the show, one of them I had talked to her mom at the tea for a few minutes, never sharing what was wrong with our girls. At the show I found out she has Leukemia, but is in full remission. Her dad said that type she has is 90% curable after treatments, so they fully expect her to never have a reoccurance. I was very happy for them. Then he asked about Zoe, we told him she has cf, he pondered for minute then asked, is it curable?? We said, no, not yet. He gave us his empathy. It was amazing seeing all these little girls together, all with their own medical problems, all princesses in their hearts. Sad, but amazing.
The next night we went to the Disney Princess on Ice show that they had given us 6 tickets to! "They" being "Dreams Come True". They did the Princess Tea and gave us the tickets, it was so wonderful of them. Also at the tea, they gave Zoe an official program, light-up Cinderella toy, crown, coloring book, tons of hair stuff, nail polish, lip glosses, jewelry, the beautiful dress she is wearing in the picture, etc...The ice show actually was amazing. Very professional ice skaters! They even had a dragon that blew real flames onto the ice!! The kids loved it! We were sitting with the other "Dreams Come True" kids at the show, one of them I had talked to her mom at the tea for a few minutes, never sharing what was wrong with our girls. At the show I found out she has Leukemia, but is in full remission. Her dad said that type she has is 90% curable after treatments, so they fully expect her to never have a reoccurance. I was very happy for them. Then he asked about Zoe, we told him she has cf, he pondered for minute then asked, is it curable?? We said, no, not yet. He gave us his empathy. It was amazing seeing all these little girls together, all with their own medical problems, all princesses in their hearts. Sad, but amazing.
Zoe is still coughing and clearing her throat a lot. We only have one more week on the Bactrim. I hope it all clears up before then. I know it is probably the da#@ MRSA raising its ugly head again. We will just continue the fight.
We have had some great responses in the fund raising department though! Our dear friends, Michael & Theo had a recruitment dinner at their home Sunday evening. It went really great! They had an excellent turn out, we met some very nice people who truly seem very concerned. It was heart warming. We have received a little over $1000.00 in the mail this week!! Yeah!!! The walk is in two weeks!
Good night and thank you for reading....please continue to pray for our precious Zoe....and all of our friends with cf fighting the fight everyday.
Love,
Jada
Zoe has MRSA?
ReplyDeleteWhat a little princess! We will have to get them in their princess dresses and then post the pictures side-by-side! I'm glad she had a great birthday--and the family could celebrate it in such a special way! <3
ReplyDelete