Tuesday, April 21, 2015

Long time since we updated!

Hello Family and Friends!

We hope this finds you all doing well in 2015! So far, this has been a wonderful year for our family! Zoe has been relatively healthy so far!! We are so grateful for this!!!

I struggled with doing this donation request again this year, I think because I feel like we say/ask the same thing every year. I don't want this to be the dreaded request every year....I want people to understand WHY we do this. It is very humbling and difficult to ask people to give up their hard earned money. We truly BELIEVE the CFF (Cystic Fibrosis Foundation) will be the first non-profit to find a CURE for a disease!! A disease that presently ravages 30,000 people in the U.S., including our sweet Zoe.

Zoe had her worst year yet in 2014. She had 4 extended hospitalizations. Almost her entire summer was spent on IV’s. She had only a few weeks total where she was not being infused and could enjoy her summer of swimming. This is really tough on a 10 year-old. She also dealt with a new bacteria, MAC. It is a horrible bacteria that causes lung damage. She had to start seeing an Infectious Disease Dr. due to this bacteria. The regimen to treat this bacteria is extremely hard on her body and drawn out. She was put on 3 strong oral antibiotics together starting last May and has remained on them since. The treatment course is 12-18 months. As I mentioned, these 3 meds are very hard on her body....at one point her liver enzymes went sky high! She also had more episodes of collapsed areas in her lungs. Needless to say, it was a tough spring/summer for all.

In order to keep Zoe as healthy as possible....a tremendous amount of medication is necessary. The CFF is the only organization in the U.S. that funds the research to get these life-saving drugs approved. Zoe is presently up to taking over 950 pills a month, 240 breathing treatments a month, 90 chest physical therapy/airway clearance sessions a month, 60 nasal rinses, and 60 nasal mist antibiotics. This regimen must be followed non-stop..... without a break. EVER. There are no vacations from these medications and therapies. This is why we need your help every year! We cannot do this without YOU!!

No donation is too small...every dollar counts!!

Thank you from the bottom of our hearts....Scott and Jada

We know we are asking for donations late this year, Zoe's walk is May 16th, 2015.

You can donate anytime though!!

For super easy, secure dontions, go to: cffh.convio.net/goto/zoeforlife

1 comment:

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