Zoe for Life

Wednesday, July 11, 2012

I thought I would post some older pics of Zoe.... It's amazing the difference!! As far as an update goes... Jada received the results from Zoe's latest sinus scan and she has polyps growing again .... Due to the CF obviously.... I really hate CF! Sooo we will put her on another regimen of steroids, Cipro, and culturelle and see how she reacts. After this she will have another CF Clinic visit with her Pulmonologist docs, perhaps another scan, and we will re-evaluate her. Hopefully the meds will take care of it and she won't have to have sinus surgeries again.... Love your precious children.... Life's too short!!! Scott.... AKA Zoe's daddy :-)

2 comments:

SherryJuly 12, 2012 at 3:17 AM
I'll keep Miss Zoe in my prayers. Hugs to you all....especially Zoe.
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RichardJuly 29, 2013 at 11:56 PM
Scott, Zoe, and family. praying for you. CF took my daughter just before her 16th birthday in 1999, and her best friend at 22 (post transplant) in 2002. CF is nasty.
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Wednesday, July 11, 2012

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