Zoe for Life: Mel's story part 4 final post.

Wednesday, January 27, 2010

Mel's story part 4 final post.

The final post about my bestfriends last days is done.
http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=52583&catid=446

2 comments:

AnonymousJanuary 27, 2010 at 6:48 PM
Thank you so much for posting Mel's story. You did a wonderful job telling the world how amazing she was. We love you!!! Dalton and Donna
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AnonymousApril 6, 2010 at 10:28 AM
Zoe,
What a beautiful girl you are. My niece is 22 years old and has CF. During her school years she did not tell her class mates that she had CF it was a family secret. Now in her adult life she is living in her own house, and taking college courses but with her health routine as her top priority. It takes up your mornings and evenings but it worth doing preventative maintenance. I hope that you will make it your priority. Live for today and enjoy. You are very special. Mom & family: hugs to you.
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Wednesday, January 27, 2010

Mel's story part 4 final post.

2 comments:

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