Zoe for Life: Good News Finally!!

Friday, May 8, 2009

Good News Finally!!

YEAH!!!!!!!!!!!!! Zoe gained 2 whole pounds!!!!!!!!!!! In just over 6 weeks!!! Truly a lot of answered prayers!....and a lot of food!!! That puts her BMI at 54 %...they want it to be a minimum of 50 %, so we are good for now!!!

I did discover Haagen Dazs Icecream though! Did you know that the chocolate peanut butter has 23 grams of fat in just 1/2 cup!! OMG! She LOVES it!!

They don't need to see her until July now. We just have to keep stuffing her.....and pray that her culture comes back clean. Hopefully then we can have a few months break...she needs it.

Thank you all for your thoughts and prayers.....
Jada

2 comments:

AspiemomMay 8, 2009 at 7:49 PM
Yeah! That's a real praise!
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AnonymousMay 8, 2009 at 8:58 PM
Way to go Zoe! That is fantastic!!!! Party for Zoe! And Reilly will be trying out that ice cream as soon as I hit the grocery store. Great job!
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Friday, May 8, 2009

Good News Finally!!

2 comments:

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