Zoe for Life: First day of blog....

Monday, February 25, 2008

First day of blog....

Today is our first blog comment...we are just starting our web page...hoping that this will bring awareness!!!! Zoe has been "cough-free" and antibiotic free for about 4 weeks now!!! We feel like we are on cloud nine! Please feel free to post comments....we really hope to get this up and running in the next week or so!!
By the way, Terri, our very good friend, is the first one to visit our site....!!! love ya honey!
Love,
Scott and Jada

2 comments:

kayleesgrandmaFebruary 25, 2008 at 11:04 PM
WHoopee! Ain't this special!!!
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Miss MelissaFebruary 28, 2008 at 11:04 AM
Jeeze Terri..since when are you limited with words :P

I am glad to FINALLY be told about this page. I look forward to lots of good & fun entries.

Hugs & Love to ya

Mel
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Zoe's Current Medications and Treatments

~ Zen-Pep ~ 3-4 capsules with all meals and snacks
digestive enzymes to break down and absorb fats
~AquAdeks ~ 1 daily
special fat soluble vitamins
~Prevacid ~ 15 mg. once daily
proton pump inhibitor that helps with the efficacy of her enzymes

~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis
~DHA ~ 500 mg. once daily
omega-3 fatty acid to decrease inflammation

~D3~

~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age

~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps
~Albuterol ~ 3 ml. by nebulizer 2-3 times daily
inhaled bronchodilator to open the airways
~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID
an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer
~Pulmozyme ~ 2.5 ml. by nebulizer once daily
thins the thick secretions so they are easier to cough out of the lungs

~Flovent ~ A steroid to help reduce inflammation
~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds
a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out
~Manual CPT or Percussor 5000 ~ in evening after nebulized meds
manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes

~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin

~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level
~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO

Monday, February 25, 2008

First day of blog....

2 comments:

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