Jazz's visit

Jazz has been here almost 2 weeks. She is having a terrific time! Tons of swimming, some canoeing, fishing, building tent city, playing a little Mario....her and the kids get along wonderfully. She also had her first ever Starbuck's...and LOVED it....we may have created a Frapp. monster :).

She has had a couple of sad times of crying where she needed me to hold her, cry with her and just talk. I'm hoping these times will help her in coping. (If you are new and aren't aware, Jazz, is my bestfriend, Mel's, daughter. Mel passed away in December from Cystic Fibrosis.) They live in NY and I made a promise to Mel that I would have her down in the summers.

Zoe has been doing awesome! She actually has been putting her face under the water in the pool now!!! That is a major accomplishment for our little Zoe who has had an extreme fear of even a drop of water on her face. So now maybe this winter we can work on sinus rinses. Ugghh.

Posted above is a new slide show of the last 2 months around here!!

Take care of YOU and YOURS,
Jada

Clinic

My baby girl's day consisted of this.........wake up....breakfast......1 1/2 hours of treatments w/cpt......thrown in van for one hour drive to clinic........talk with research, nutrition, doctor, pharmacy, resp. tech, then the dreaded throat swab........then the never accomplished before PFT attempt.........then head to lab for yearly blood draw..........did EMLA...on the inside of elbows........first try.......NO GO.....my baby girl being held down by myself and her research doctor........try again....only good looking vein is on the back of hand...of course...NOT EMLA creamed.....go for it we say.........HOLDING a screaming, crying, sweating, scared to death little girl down.....YAY...finally get a good stick........... 10 vials of blood later.........we get to leave.....she is limp, exhausted, white as a ghost.........has me carry her out....Andrea, our CFF lady was there with us today........I'm sure a new experience for her......thank God she was there, she helped carry my notebook, purse, meds from pharmacy....say goodbye to dear sweet 8 month pregnant Andrea,....head home an hour...to do what when we get home????????? TREATMENTS!!!!!!! OMG. I am so over CF. I'm sure Zoe is also. Poor little girl....what else would a little 6 year old girl want to do today?????????UGGHHH!!. Sometimes CF just SUCKS. That is it. Take care of YOU and YOURS,

Happy Birthday Baby Girl!!

I can't believe our baby girl is 6 today! Time sure does go by fast. I ask her all the time why she is growing up so quickly....she tells me it's because she eats so good!! She asked me if it had been 6 years ago that she was "hatched" from me....LOL....that is what she calls having a baby!! I love the things that come out of llittle ones mouths!
Have a wonderful day!!
Take care of you and yours........

Jada

To celebrate her 6 years.....please consider donating $1.00 for every year she has been with us!! That's just $6.00!! Simply click on the Great Strides link to securly donate to the CFF!!

Fundraising, infections and kiddos.....

We had our annual Ben and Jerry's Free Icecream fundraiser on Tuesday. The most we have ever raised was about 325....we raised $508.00 this time!! I was really surprised. There was a whole lot of $1.00 bills put into the bucket....those ones sure do add up! Thank God for generous people!!

Zoe still hasn't gotten over her sinus infection. We have been fighting it for over 2 months now. First we watched it....then we called in....then we had the 3 weeks of Augmentin....then we watched it for 2 weeks again...now we have called it in again because it is still driving her crazy....runny, thick, yellow mucus, out of breath, etc..... sooooo... now we were put on Cipro. Yay. The fun begins. Anyone out there have any advise on how to deal with the "rules" on before and after times for taking Cipro with antacids and milk products??????? Any advise would be helpful about now.....

As far as me....I have had a few sad times lately. Does it get better? I sure as hell hope so. Yesterday there was a voice mail showing on my house phone. I hit the play button.....it said....one new message....then it proceeded to play a message from Mel. From several months ago. It blew me away. I cried. Couldn't even listen to the whole thing. I didn't even know this message was on my answering machine. How can a message be there but I've never heard it for months???

My 3 middle kiddos left Tuesday for Tn. They will be staying with my parents for 4-5 weeks like they did last year. They have a blast when they go there. I miss them terribly, but know they are in the best hands!
I hope and pray you all are doing well..... take care of YOU and YOURS................................
Jada

Great Strides

I have been humbled. When I put up the Great Strides link on my cf.com blog....I really didn't think anyone would donate. Hell...we are all fighting the same disease.
I have had several people from this site give to Zoe's Great Strides.....some say...go team Zoe....others are doing it in memory of Mel..... Thank you!! I love ya'll....................
Today is the 3 month anniv. for Mel's death....and Friday is her birthday....hard week for me. Jazz is feeling it also....please keep her in your thoughts and prayers.
Take care of you and yours.........