Kids are home....

Sorry I haven’t updated in a bit…but things are a little wild around here right now.
The ‘missing’ kids returned safely Friday night! Yeah! They had the best time with their grandparents! My sister, Noelle, and her 3 little girls are staying with us all week. We have had a lot of fun! We ran out to the beach yesterday in hopes of sun, so she could get a couple of pics of her and the girls. It got all cloudy & windy on the way. So we stayed just long enough to get the pics and let the girls pick up some seashells.
Today is our 9th wedding anniversary! Nine years sure can go by fast! Happy Anniversary Honey! I love you forever and always!!
Zoe woke up with a 101 fever this morning….so we are watching that. She had a couple of coughing attacks in Wal-Mart yesterday….uggghhh. If her cough increases then I will be calling her clinic.
If anyone listens to the radio program “The Wall Street Journal This Morning”, tomorrow morning, Thursday, Gordon Deal will be airing a program “The Longest Commute”. Guess who will be in it???Yes, my husband! We have NO idea what Gordon is going to say….just hoping he puts some focus on CF, for the awareness. This is a NATIONWIDE program, so the awareness could be awesome!
Take care of you and yours…..
Jada

Scary days....

I haven't posted on this subject...mainly because we were just so scared. Scott was sent home at 9 a.m. Thursday morning...they said his computer was 'flagged' by I.T. They took his badge, keys, computer, and sent him home. We have been trying to keep super busy around the house, doing 'fix-up' things that we never have time to do....meanwhile...wondering what the heck is going on.
We have some very good friends, who the husband works with I.T. people, tell us...no worries...big companies do this all the time. They are looking for people that might be 'selling' company info. Well, needless to say, Scott doesn't do that. So, for 6 days now, we have been wondering, going stir crazy....does Scott have a job...are we going to be jobless, homeless, insuranceless, etc...
We got the call at 4:15 this afternoon.....it's all FINE. Sure. We go through pure HELL for 6 days....wondering...and it's all FINE. He reports back to work in the morning. Big companies = SCARY.
All I have to say is.....THANK YOU GOD!!!!!!!!!!!! Thank you....the people that did know about thiss...for praying for us. We have a job still.
On another note....the kids get back Friday night! Yeah! We miss them! Zoe REALLY misses them. She needs someone else to play with besides mommy and daddy.
She has started coughing/clearing her throat more in the last couple of days. We will just watch for now....see if it progresses.
Better get some sleep....take care of YOU and YOURS....
Love,
Jada

Grilled Cheese Hearts

Soooo...I have become creative...trying to find ways to get Zoe to eat good fattening food! Here is a picture of tonights dinner for her....tomato soup made with 1/2 & 1/2 and real butter, grilled cheese with real butter, 3 slices of Land of Lakes American Cheese, cut into perfect little hearts for her..... She ate both of the hearts and a few sips of soup....she likes to dip her sandwich...just doesn't eat much of it. As you can see by the picture...she still will only drink WATER....uggghhh

We have been doing all sorts of things around here lately. Scott is painting our bedroom. Yeah! It was a nasty, burnt yellow, baby diaper poop color before. YUCK!!! Of course all of us cf'ers can relate to the nasty color! So, now it is like this.....3 walls are a turquoise color...the other wall(behind the headboard) is chocolate brown. Our comforter is the exact turquoise color....I bought a pillow to go on the bed that is the brown swirled with the turquoise. I love the soft blues like this...feels very tropical, soothing to my soul.

The kids are having a GREAT time at my parents. They got 12 inches of snow last night! They are in snow heaven!! They don't even hardly miss me. View from my Dad and Mom's deck!

Zoe is doing well. A few coughs here and there. Nothing to write home about. Her appt. is looming in the distance....about her weight. We will see.

Hope you all have a lovely evening....take care of YOU and YOURS.....

Love,

Jada

Zoo today

I took Zoe to the zoo today! It was a perfect day for it. About 65 degrees, with some clouds and sun. My girlfriends little girl, Michaela went with us so that Zoe would have some company besides me. She loves Michaela, they are the same age and play together very well. So here are some pictures from our day.

Zoe is still doing really well! Had a big belly ache tonight. But still only an occasional cough!! Yeah! Have a terrific night....

This week

I knew it was going to be tough without my kids being around.....BUT....this is crazy! (If you missed a few posts ago, my parents kidnapped my 4 kids for 5 weeks).

I am now Zoe's bestfriend, mom, play with me now, read to me now, talk to me now, etc...etc...etc... Phew! I am tired! I knew I wasn't made to be a mom of just one kiddo!!!

The bad points of my kids being gone:

I MISS them TERRIBLY!

I MISS talking with my older sons

I MISS them playing with Zoe so I can get a few minutes to....you know....shower...blog....

Zoe misses them!

Pixie (Madison & Sydney's dog) hides under the bed, under the chair, wherever she can to get away from Zoe's clutches...I have no doubt she MISSES the girls!

I MISS my older sons hanging out with me after Scott falls asleep watching a movie...

The good points of my kids being gone:

WARNING: MOST OF THIS WILL HAVE TO DO WITH NOT HAVING TO BE MODEST!

I can PEE without shutting the bathroom door

I can come out in the morning with NO bra on under my t-shirt

I don't have to worry about kids walking in my room after my shower

Scott is very happy that I can wear itsy bitsy nightgowns around the house at night

Zoe and I can go out to lunch for $5.00

My grocery bill is so much lower that this week I was able to actually buy things like towels and bathroom rugs

Anyways, the kids got to see snow yesterday, the first time for Sydney and Madison!! They have ridden my parents horse, gone fishing, gone to church, gone to Sam's Club, watched my dad be ordained an Elder, been spoiled rotten by my mom's cooking and played a billion card/board games with my parents! I don't think they will ever want to come home.

The other night, sitting in the 'comfy' living room chair, I was tickling Zoe. She was squirming, laughing....then she did the inevitable 'head-bang' on my nose...with her forehead! I actually heard a crack! OMG! I cried, she whimpered....Scott came running with advil and wine! I believe it is cracked, I can't even touch it still, it hurts so BADDD!

We had the poodles groomed today. The little one (Pixie) is so skinny, she looks like a rat now. I prefer her fluffy, but when noone brushes her, she gets so matted that there are no other options but shaving her. Poor thing.

Zoe's culture results from last week came back. Of course, something new. She cultured Yeast. They do not treat it. Soooo, that was good news (I guess??). Also received a letter that her next CF appt. is scheduled March 31st, along with G.I. So, we have 7 weeks to get the weight on instead of 6.

I will post some pics from this last week...

Hope you all are doing great....take care of you and yours....keep up the FIGHT!

Jada

Pixie before 'grooming'

Poor Pixie after 'grooming'

A very nice lady sent Zoe 'healing stones', these are the 'blood stones & quartz chloride'

We rub them on her everynight while praying !!

Making brownies with Daddy

Anybody besides me ever have a sippy cup (for your kiddo) and a martini (for you) on your nightstand????? :)

Clinic today...

Trying to blow pfts for the first time!


Making a "funny" face before pfts!

What a looonnnggg day. Zoe had to be at CF clinic at 10:30, then ENT at 2:30. CF clinic visit: weight did NOT increase at all. Not one ounce. She is exactly the same as she was last July. We feed her the highest calorie/fat diet possible. With the exception of the supplemental drinks that would be awesome IF she would drink ANY of them. But of course, she doesn't like any of them. Her nutritionist said today, "Well, you are already pulling all my tricks....let's brainstorm...". So her and Zoe's doc talked and came up with a couple of things to 'try'.

We are switching her Zantac to Prevacid. Sometimes one works better/different than the other as far as working with the enzymes to utilize the fats/calories better. We are also adding 500 mg. DHA. They are scheduling her a follow-up in 6 weeks with CF clinic and G.I..

She also did pft's for the very FIRST time today! It was quite funny! She didn't get the having to push your breath out for a full 3 seconds down very well. Even with her only pushing out to 1 1/2 seconds, they were able to get a prelim. # of FEV1 = 102. They said they won't use her numbers in her records until she is 'good' at the technique.

ENT appt. went great! Her nose looks great! So we don't have to go back to ENT for 3 months.

So, that was our day, I'm tiried, going to go cuddle up in bed and watch a funny movie, need to laugh.

My kids left today...

My parents stoll my kids!!! Honestly, they took them home with them for 4 1/2 weeks. Well, they took.....Austin 15, Alex 12, Madison 11, Sydney Kaye 7.....I think I might have a heart attack!!! :) Just kidding....but....being without my kiddos for ......yep....you guessed...a LONG time to ME....almost 5 weeks!!! I think I might go CRAZY!!!! Sooooo..... it is me, Scott....and Zoe. That is it. Oh my gosh. My house hasn't been this empty in.....hell....I can't remember when. Uggghhh.
Soooo, if you are on my calling list....BEWARE.... I may be calling much more OFTEN than usual.
MY PARENTS HIGHJACKING MY KIDS!

On another note, Zoe has her CF appt. tomorrow, and her ENT appt. All in the same day! Please pray that she has had a weight increase....other wise, we will be discussing WEIGHT...Uggghh.

Have a nice night....take care of YOU and YOURS....
Love,
Jada