Clinic

My baby girl's day consisted of this.........wake up....breakfast......1 1/2 hours of treatments w/cpt......thrown in van for one hour drive to clinic........talk with research, nutrition, doctor, pharmacy, resp. tech, then the dreaded throat swab........then the never accomplished before PFT attempt.........then head to lab for yearly blood draw..........did EMLA...on the inside of elbows........first try.......NO GO.....my baby girl being held down by myself and her research doctor........try again....only good looking vein is on the back of hand...of course...NOT EMLA creamed.....go for it we say.........HOLDING a screaming, crying, sweating, scared to death little girl down.....YAY...finally get a good stick........... 10 vials of blood later.........we get to leave.....she is limp, exhausted, white as a ghost.........has me carry her out....Andrea, our CFF lady was there with us today........I'm sure a new experience for her......thank God she was there, she helped carry my notebook, purse, meds from pharmacy....say goodbye to dear sweet 8 month pregnant Andrea,....head home an hour...to do what when we get home????????? TREATMENTS!!!!!!! OMG. I am so over CF. I'm sure Zoe is also. Poor little girl....what else would a little 6 year old girl want to do today?????????UGGHHH!!. Sometimes CF just SUCKS. That is it. Take care of YOU and YOURS,

Happy Birthday Baby Girl!!

I can't believe our baby girl is 6 today! Time sure does go by fast. I ask her all the time why she is growing up so quickly....she tells me it's because she eats so good!! She asked me if it had been 6 years ago that she was "hatched" from me....LOL....that is what she calls having a baby!! I love the things that come out of llittle ones mouths!
Have a wonderful day!!
Take care of you and yours........

Jada

To celebrate her 6 years.....please consider donating $1.00 for every year she has been with us!! That's just $6.00!! Simply click on the Great Strides link to securly donate to the CFF!!