After much consideration.....we now have a 12 week old Standard poodle. We have been seeing Standard poodles as 'therapy' dogs in the last couple of years at different places. Zoe does 2-3 hours of therapy everyday. Sometimes it is hard to always have someone sitting with her to keep her company. Sooooo the therapy dog idea came into the picture! This was last year when we talked about it with Zoe. She was very interested. BUT...we couldn't find one for less than $1000.00 !! The average price was $1500.00!! Obviously, we dropped the idea. Last week, while going to sleep, Zoe had what we call a 'meltdown'. She was crying, very sad and upset. She wanted a 'therapy' dog, to keep her company during treatments, one she could call her own, to love her. I felt soooo bad. Yes, I am a guppy. Now, the magic of all this....we get this free local paper every week in the mail. I have NEVER seen an ad for Standard poodles in this paper. This week there was one!! Not only that, but they were CKC registered white 11 week old pups. For ONLY $250.00!!! I called the lady immediately...yes, she had 3 females left...so Alex and I secretly hit the road to go get one! One of the pups (the one that we both liked the best),,came over to us and layed right next to us....she picked US! Zoe was soooo happy!!! We will train Lilly to sit with Zoe during all of her treatments. We think this will be a great thing for Zoe.
Christmas was beautiful this year! We had a houseful.....it was quite busy! As most of our readers know, my best friend, Mel, passed away 1 year ago. Her daughter, Jazmine, has become a member of our family...we love her just like our own! This year she was able to spend her Christmas vacation with us. This was a very special time for all of us. A super Thank You goes out to all of Mel's friends that sent Jazzy Christmas gifts, cards, letters...everyone was read and cherished by Jazzy. I can truly say she had a memorable Christmas.
All of our grown children made it home also! They all took their vacation times to spend 10-12 days with us. We stayed up late Christmas Eve, wrapping presents, laughing, hugging and totally enjoying each other's company.
Christmas day took about 5 hours to open gifts! We have a tradition where we start with the youngest, watch her open one gift, then go to the next person. Soooo when you have 13 people in your house....it takes a while to watch everyone open their gifts! It was lovely!!
During the two week time, we played a lot of cards, board games, pool, ping pong....tons of jumping on the new trampoline (everyone realized then how out of shape they were)...cooking, eating, drinking, staying up way too late and sleeping in way too late...laughed and hugged a ton...
For New Year's Eve, we all got to be treated like royalty at the movie theater. Elaine, our new friend who works at the CFF office, also works at the Regal theater. She arranged a lovely experience for all of us. 16 of us (all staying at our home at the time) arrived at the theater, Elaine greeted us with warm smiles and hugs, then we had a tour of the upstairs where they have the films. It was amazing! All the movies are in one long room. At this theater, most of the movies are still real film, only one was digital. Zoe was the special guest, so everyone else went down to the 'reserved' section for us to watch the new Narnia movie. Zoe stayed up top with Dad and Mom, to wave at everyone through the window, then push the button to start our movie! It was fantastic! After, Elaine had Narnia t-shirts, silly bands, notebooks and posters for all! Thank you Elaine!
Then a lovely dinner at Pepper's Mexican Cantina....fireworks and champagne at our home later to bring in 2011!!
The luggage 'piggy tags' were special to give to Jazzy for her new luggage(thanks to gift cards from Mel's friends)...they were mine and everytime I went to Mel's house, she was always wanting my 'piggy tags' for her luggage. So, I gave them to Jazzy and told her the story. We both were in tears....
It was a magical time...as my sister-in-law, Courtney sais....I LOVE MY LIFE!!!
A drug, Denufosol, that all in the CF community was hoping was going to help with CF, just failed its Phase 3 trials. This is the first 'promising' drug that has failed in such late Phases since Zoe's diagnosis. I feel very saddened by this loss....that wasn't even here yet. Hope....crushed.
Born April 7, 2004. Diagnosed with Cystic Fibrosis on the eve of her first birthday....
This blog will be a story of Zoe's journey with Cystic Fibrosis. We will try to keep up to date information on Zoe, our family and Cystic Fibrosis news. Thank you for your interest in our lives.....may God bless you....
Cystic Fibrosis is a life shortening genetic disease. CF causes the body to produce an abnormally thick, sticky mucus, which clogs the airways and leads to life-threatening lung infections. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to break down and digest food.
There is NO cure!
Zoe's Current Medications and Treatments
~ Zen-Pep ~ 3-4 capsules with all meals and snacks digestive enzymes to break down and absorb fats ~AquAdeks ~ 1 daily special fat soluble vitamins ~Prevacid ~ 15 mg. once daily proton pump inhibitor that helps with the efficacy of her enzymes
~Azithromycin ~ 250 mg. Mon., Wed., Fri., used for chronic lung infection, Bronchiectasis ~DHA ~ 500 mg. once daily omega-3 fatty acid to decrease inflammation
~Calcium ~ due to CF patients being prone to Osteopenia and Osteoporosis at a very early age
~Mometasone ~ a steroid used in nasal rinses to reduce inflammation and polyps ~Albuterol ~ 3 ml. by nebulizer 2-3 times daily inhaled bronchodilator to open the airways ~Hypertonic Saline 7% ~ 4 ml. by nebulizer BID an extra salty sterile solution used to help clear mucus from the lungs & in Zoe's case we are using a face mask so the medicine will go through her nasal passages hopefully keeping her sinuses clearer ~Pulmozyme ~ 2.5 ml. by nebulizer once daily thins the thick secretions so they are easier to cough out of the lungs
~Flovent ~ A steroid to help reduce inflammation ~Incourage Vest ~ 30 minutes in morning after all 3 nebulized meds a chest physiotherapy vest that fits on her like a ski jacket, it inflates with air, then vibrates at different frequencies, to help loosen the mucus so she can cough it out ~Manual CPT or Percussor 5000 ~ in evening after nebulized meds manual CPT is clapping on her lung areas front and back with your hand or a soft percussor cup, the Percussor 5000 is an electric handheld percussor, these are both done for 15 minutes
~Monthly Port a Catheter flushes ~ administered by her home health nurse. 5 ml of 100 unit Heparin
~Food ~ Zoe requires around 2500-3000 calories a day to maintain her weight at a healthy level ~Love ~ Zoe requires tons of kisses and hugs everyday!!!! XOXOXOXO
Zoe's Genetic Mutations
Delta F508 (class 2) 1717-1G to A (class 1) classes of CF genes range from class 1-5, 1 being the most severe disease causing to 5 causing little to no symptoms
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