Wednesday, April 15, 2009

Fundraising Time of Year!!

I am so excited! Last year I did a table at Ben and Jerrys for free icecream day....they were debating which charity to let do it this be fair and all....well....they are letting me do it AGAIN!!!!!! Yeah! When customers go through the line to get their icecream, they send them all to my table to get their '10% off' key tag for B&J for the year, sooooooo, they have to look at my CFF stuff! Since they got their icecream free, most of them will donate something. Last year we made almost $400.00!
I also was in my favorite local Mexican rest. yesterday, talked to them about selling the pin-ups at the register. They talked about it and said YES!! So, tomorrow I will be dropping off posters I made tonight and the pin-ups. They all just adore Zoe, they even have her card taped to their wall right next to the check out!
As far as Zoe's tests, still waiting. Will let you all know as soon as I know something.
Have a great night!

Wednesday, April 8, 2009

Yesterdays results

Yesterday was Zoe’s “Official” 5th Birthday….but she thinks it was last Saturday. We celebrated it early for several reasons….Scott left Monday for Tulsa on business for 2 weeks and yesterday she had the 2 hour blood glucose test w/ an i.v., we didn’t want her to relate another birthday to the hospital. I doubt she remembers her 1st birthday, but, it happened while in hospital for 2 weeks when she was diagnosed.

So, her birthday was great! She had a Princess cake and Princess presents. Today she even received a wonderful present from Kaylee and her terrific grandma(Kayleesgrandma)!!!

We got to the CRC (Clinical Research Center) at Wolfson Childrens Hospital (Zoe’s normal hospital) at 8:30 am…she was NPO since 9 pm the night before. I had put the EMLA cream on 4 areas of her arms. The nurse she had (who is in charge of the CRC) was awesome! She was able to get a vein first try! Zoe still had a lot of anxiety before the needle going in….but when she realized it was over and didn’t hurt…she looked up from crying, smiled and said, “So, do I get stickers now???” We all laughed.

Then the blood drawing started. That was a lot of blood. You can see by the pictures how many tubes there was. They used everyone of those. After they got all the blood they needed for all the labs, they drew the first draw for the glucose testing. It is called a ‘fasting’ draw, fasting being because she was NPO since 9 the night before. The nurse put it in the tester, I looked at her, she said, it’s high. Uggghh.

Now, she had to drink the glucose syrup. That went a lot better than I thought it would….I used an oral syringe, gave it to her like a medicine. She got it all in within 2 minutes! Then we wait for 1 hour to take the next draw. Her brother, Austin, our oldest daughter, Tara, and her boyfriend came to be with us, so that was a nice distraction for Zoe.

Next draw……she said, it’s high. I think I wanted to run in the bathroom and scream, cry, kick, you name it. I had fully expected to go in to the CRC, do this test just as a ‘ruling’ out test. I really did not think she would test high.

Her last draw was borderline. I said, “So, where does this leave us???” She called Zoe’s clinic, who said they will wait on all the other blood work, like the insulin levels, IGA levels and A1C levels. Then all her docs will discuss all the results and decide what/if there is anything that needs to be diagnosed or decided on. The blood work will take 2 weeks. So, the waiting has begun.

Tomorrow morning Zoe and I have a short meet/greet/ speech at a highschool for fundraising for our walk. Hopefully I can do this gracefully without crying.

Well, I need to go read a book to Zoe and cuddle her into bed…..

Good night all….take care of you and yours………