Zoe's 2nd sinus surgery on Monday went very well! She still had some packing in her sinus cavity, so they removed that, cleaned her out again, took cultures and finished up in less than 45 minutes. Her O2 was great right after, holding around 96-99! She had her regular CF clinic appt. on Friday. These cultures came back clean also! So, she is still antibiotic free as of right now. She is recovering well, Dr. said she has a lot of 'boogers' in her nose for just getting cleaned out, but her ENT doc said she will have some drainage, etc... for a couple of weeks.
The yucky news was that Zoe had lost over a pound. Since her diagnosis, when we got her caught up on the charts, that was the last time we have ever heard anything about her weight. She has been in the 75-90%. It took a lot of work to get her there...but she has steadily been gaining since diagnosis. I think one of the things that has hurt us the most is that about 2 months ago, she decided that milk and Ranch dressing all taste weird now. She won't drink milk at all now and quit dipping everything in Ranch. She had always drank 8oz. of whole milk mixed with half & half at every meal. Now all she will drink is WATER!! Ugghh.
So, one of the things we are going to try is 15mg. of zinc a day. Her doc and nutritionist said that sometimes when things suddenly taste different or yucky, it can be a zinc deficiency. We all agreed it wouldn't hurt to try. They want to see her in 2 months instead of 3, to check her weight.
Thank you all for praying for Zoe's O2 to be good after this surgery....prayers were heard and answered!!
Have a wonderful week...
We're Still Here
1 day ago